Explain to me like I'm 5 how Hashimotos is diagnosed.
What tests diagnosed you?
Do you actually have a Hashimoto’s diagnosis?
What symptoms led to your diagnosis?
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So I've been reading old posts to try to understand this but I'm still confused. I get that hypothyroidism and Hashimotos are related but don't always go hand in hand. One can be hypothyroid but not have Hashimotos and vice versa. But what I don't get is how Hashimotos is diagnosed if your thyroid levels are normal. And also, why don't doctors use medications like plaquenil to stop or slow autoimmune activity.
My husband has very high TPO antibodies but his T3, T4 and TSH are normal. His mom and brother are both hypothyroid,diagnosed with Hashimotos, and have been taking synthetic thyroid meds for a decade or more. My husband also has a 1:320 ANA. We are waiting to see a rheumatologist next month. He is experiencing a lot of fatigue.
His PCP shrugged off the thyroid antibodies and basically said nothing we can do until your thyroid fails. But that makes zero sense to me.
I have Sjogren’s and I take methotrexate, prescribed by my rheumatologist, to stop my body from attacking itself. Yes it comes with a small amount of risk but the reduction in inflammation and pain it gives me far outweighs this.
I really don't understand why the literature says the risks of immunomodulatory meds, like hydroxychloroquine, or immune suppressing meds are too great so they aren't prescribed for Hashimotos. This is completely contradictory to every other autoimmune disease.
Also, how is Hashimotos diagnosed if your thyroid is functioning still? What is the diagnosis criteria?
Lastly, is my husband's thyroid doomed to fail? Are we literally just supposed to sit on our hands and wait for that to happen?
He's already been dairy free for over 10 years. We eat very cleanly. My husband is very lean and athletic. He works out regularly. He takes a variety of supplements to support his health. What else can he do?
Sorry for the long vent with all the questions. We just feel helpless at this point and doctors aren't being much help.