Just to compare with mine.

Hey there! I have a family history of hypothyroidism, but have not been diagnosed myself. I’m thinking I should probably reach out to my doctor soon to have bloodwork done, because I think I’m starting to develop symptoms. So far, I’ve noticed hairloss (like, a lot), I also feel more fatigued (especially in the evening) and I often feel like I’m cold. I didn’t notice any weight gain, which I know can be a telltale sign. What have you guys experienced as first symptoms? Did any get a diagnosis without experiencing weight gain?

I know we all have the fatigue, brain fog, weight gain, and constantly being cold. But do you have any lesser known symptoms? My tongue feels like it's too big for my mouth, which my quick Google search says is a symptom of hypothyroidism.

Or why did your dr choose to check your thyroid? I’m curious because TSH isn’t included in the typical blood panel.

A few years ago I thought I was losing hair. I went to the dr about the hair situation and she wanted to test my TSH.

This disease is so individual and sometimes our symptoms don't match what Google says we should be feeling. Here is a full body list of things I have experienced in the last year of being hypo.

Head

• Intense cervicogenic headaches

• Blurry eyesight

• Eye pain, specifically behind the left eye

• Tension headaches in my forehead

• Head pressure

• Ear pressure

• Fainting

• Dizziness

• TMJ/ Jaw clenching

• Mild sleep apnea

• Neck pain

Torso

• Shoulder pain

• Spinal popping

• Heaviness in my chest (like a cat laying on you)

• Squeezing in my chest (like a fist squeezing you)

• Shortness of breath

• Palpitations, both fast and fluttery and slow and heavy

• Stomach pain/ acid

• Slow digestion

• Burping

• Constipation

• Diarrhea, usually after several days without a bowel movement my body will produce a sudden "purging" type bowel movement

• LOW blood pressure

Limbs

• Joint pain

• Muscle pain, typically located in the calves and forearms

• Skin tingling

• Arthritis type joint pain in the toes and knuckles

• Finger swelling

Mental impairments

• Mental fatigue

• Anger

• Severe depression

• Atypical suicidal thoughts, my biggest indicator to have my levels checked!!!

• Sudden crying

• Zombie like state

• Brain fog

Gynecological Issues

• An extremely light period, typically seen with hyperthyroidism instead of hypo. Periods average 2-3 days now and were 4-5 prior.

• Issues with low libido and lack of lubrication

• Lack of normal vaginal discharge

• Itching

• Severe PMDD

This is obviously not an exhaustive list and I may add to it, but hopefully it might help some of you with symptoms that are less than typical or that your doctor tells you can't be symptoms of hypothyroidism!

How did you know something was wrong? What were your symptoms? My mom and grandma have it. I’m worried I may too due to excess fatigue, I’m 20 year old female. No weight gain or anything else.

I (24m) began having some intense symptoms in February. Feeling intensely cold in my hands and feet, globus sensation, extremely dry hands and feet, hair falling out quickly, and HORRIBLE anxiety. I went to the doctor about it in February and my TSH and T4 were tested and we’re on the higher side of the normal range. My diagnosis from the NP was health anxiety.

I went to an allergist a few weeks ago because of long-term allergies and started getting itchy hives (dysgraphia I think it’s called?) and he ordered (without me even mentioning it) a full panel thyroid lab with an antibodies test and said that it could be my thyroid causing this. I will admit I’m an anxious person for sure, but I just know that something is off in my body. I fell asleep in a meeting at work the other day. The symptoms are just getting worse! I got my bloodwork done and it should’ve been back by now but still waiting. The allergist had mentioned Hashimotos so I figured I would check out this sub and ask.

These symptoms are horrible! The ones I mentioned aren’t even half of them. I just don’t think anxiety can be causing all of this and I feel like I’ve been medically gaslight for years.

For me, I've had some of the stock standard symptoms below and yet received no diagnosis blood tests are saying my levels are normal, been referred to haemotologist for further review as I strongly think its Hashimotos or Hypo. (I am also a nurse)

- Hair loss

- Excessive weight gain no matter diet or exercise

- Cold hands and fingers/Always cold

- Constantly tired/lethargic wanting to sleep during the day

- Insomnia

- Depression

- infertility/Irregular cyles

- Low blood pressure

- Constipation

- Dizziness standing up too fast

But I noticed I had other issues I have that may have possible links;

- Carpal tunnel

- Skin tinea

- Getting sick all the time

I am a 40-year old male with a family history of thyroid problems. My mom has Grave's disease, my brother Hashimoto's, and my sister has also had problems in the last 5 years. So it's something I watch out for. And in the past 2 years, I've noticed basically every symptom gradually emerge:

• I gained weight, and rather quickly (from ~150 to ~175+), despite having a mostly healthy diet;

• Losing just 1lb takes an enormous amount of discipline and effort, but if I so much as eat one modestly heavy meal it's back to square one;

• It seems that I am often tired, distracted, and lacking motivation, or I just find the urge to want to sit down all the time (E.g., something like international travel kicked the ever-living piss out of me);

• Muscle aches and stiffness are commonplace all of a sudden (I went to get an xray on my back, and even did 5 weeks of PT, because I was throwing out my back so often!)

• I find myself far more down in the dumps and irritable about things than I ever have been before, and all despite having everything going for me by pretty much every objective measure. For lack of a better word, I feel "meh.";

• Not sure if this is also a symptom, but I have been sick nonstop this year, including frequent rashes which has NEVER happened before;

• Then, my most recent blood test for a life insurance exam (which did not test for thyroid levels) showed high cholesterol.

While much of this can be explained by having a son in the terrible twos and "you're not 25 anymore," all of this seems to be pretty strong evidence of hypothryroidism. And yet my most recent lab test from 2023 said I have thyroid levels within normal range. I'm obviously going to address this at my next doctor's appointment, but in the meantime, I feel compelled to ask, did any of you have a similar experience before being diagnosed?

I feel like, at this point, I actually WANT to receive a positive diagnosis, so I can finally start treatment and stop wondering "what's wrong with me?"

UPDATE: Thanks everyone for sharing their insight and experiences! It seems obvious I need to continue to be my own advocate in the doctor's office. The only question is whether I go straight to an endocrinologist.

Hello everyone. I have a question regarding treatments for hypothyroidism. It has been 10 years now that I have been taking the same dose of medication because my doctor believes it is appropriate. My blood tests indeed show that my TSH level is within the normal range with this treatment. However, I have noticed for several years that the symptoms associated with my condition are still present: extreme fatigue, sensitivity to cold, depressive thoughts, mood swings, and so on. I have obviously discussed this with my doctor, but he refuses to change my dose because the most important thing is to keep my levels within the normal range.

What do you think? Are there others in the same situation? Is it normal to have all these symptoms despite taking the medication?

What weird hypo symptoms do you get when you aren't medicated enough/need to up your dose? These symptoms go away when you get more/enough medication.

Mine:

Yellowing skin around my mouth

Itchy scalp and hair loss

BRAIN FOG

Cold sores in my nose (never come out unless I'm low) There's a study about herpes and low thyroid!

No new hair growth (little fuzzies on your part)

Freezing hands and feet

Weight gain specific to my waist

I get weepy and cry about everything.

Sore tongue with scalloped edges.

Edited to add weepies, tongue and to try to reformat text.

hey everyone! F25 here. long time suspicion of hypo/hashi. i have a lot of symptoms. what were your symptoms that lead you to get tested? what were your blood levels like that indicated hypothyroidism or hashimotos?

planning on seeing an endo soon, but would like some insight from the community.

I have been dealing with fatigue , increased appetite , sensitive to cold , muscle pain, tingling in hands and weight gain for 3 months. All blood tests came back normal

I didn't have any thyroid antibody tests done so I'm not sure about that. Does anyone know if hypothyroidism takes a while to show up in blood tests or can it come back normal while still having it ?

After a year and a half of hellish symptoms, I got diagnosed with “sub clinical” hypothyroidism and am about 5 days into 50mg levo doses. My symptoms leading to this were intense, I also was dealing with a hard withdrawal from SSRIs.

Among the worst: -Head pressure, like I have a head cold or my brain is made of lead

-Back of neck pain, honestly full body pain

-Weird vision problems, like my nervous system was lagging, some new eye nerve damage too

-Digestive issues

-Drops in blood pressure and heart rates that made me feel like I was actually going to die

-A surge in my ocd like anxiety

-terrifying fatigue

Does anyone else relate to these symptoms? My TSH was only like a 6.2, yet my symptoms were so intense. The meds haven’t really helped, but I know they might take awhile.

Hi ladies,

Just wanted to share my story and encourage you to get tested by an endocrinologist or your PCP to rule out hyporthyroidism (under active thyroid) as many of the symptoms emerge during menopause and present in a similar way - fatigue, weight gain, etc. Just to add to the fun - ugh! Hypothyroidism affects 4% to 10% of women, increasing with age. That means a few of you on this thread may be undiagnosed. A simple blood panel test can detect it.

My story - I'm 55 and started going into peri around 47 and even though I exercise regularly - running 3+ miles 3x a week, lifting weights and some yoga I was still lethargic, somewhat overweight, and didn't feel great. My PCP never caught or recommended I be tested!! About three years ago, a friend recommended I go to a specialist reproductive/ sexual health wellness center for hot flashes and other menopause symptoms and the nurse who did my blood work caught that I had hypothroidism. I take a low dose of a standard RX drug called levothyroxine. TOTAL game changer - I lost weight, had more energy, and feel so much better.

Hope this helps some of you!!

https://www.menopause.org/for-women/menopauseflashes/menopause-symptoms-and-treatments/is-it-menopause-or-a-thyroid-problem-

Any males with hypothyroidism? I was diagnosed 10 years ago and have been on levo. What are some of the symptoms you guys feel even when tsh and t4 are normal?

Hello friends. I've noticed that there are many fellow males in this subreddit suffering from hypothyroidism, so thought I'd share a couple of symptoms, as a 32 year old Male sufferer.

• No morning wood / Waking up unrefreshed

• Weak erectile strength / No random erections

• Diminished libido / Finding my girl a lot less attractive (on a physical level)

• No urge to exercise, exercise doesn't make me feel good

• Muscle spasms / Missing heartbeats / Eyelid twitching

• Slow speech / Train of thought

• Flat emotions / No motivation or excitement

Do you have any of those symptoms or any other odd symptoms? How did those improve when on your optimal dose (and at what TSH that was)?

Hi everyone, this question is for those of you who are subclinical but symptomatic and who have taken levothyroxine.

Also to clarify, I'm not so much interested in hearing about mood/mental symptoms (e.g. depression) OR the classic low energy levels as both of these have been discussed extensively in previous posts to this subreddit. I'm trying to look into less discussed physical symptoms.

I appreciate any help more than you know.

Edit: Some issues I would really like to hear about are related to muscles, circulation, and/or bradycardia.